We are glad you have found us!

Perhaps you're a parent of a child with Congenital Myotonic Dystrophy, a grandparent, a relative or friend. Maybe you are a professional, researching the condition, or perhaps you are still unsure whether your child has CMMD - whomever you are, we are happy to have you join our CMMD family.  

This is a group for YOU - so all your suggestions and comments are welcome!

Please take time to have a good look at our site, and if you have any questions, ideas, information, or just want to say hello - please do feel free to email us!




 Cure DM is delighted to be recognised as an official partner within the Prefer Project consortium.

It is an honour to be recognised for the work we are doing within the NMD sections of the study. Please keep an eye on this page for official updates and information regarding the study.

"PREFER will establish recommendations to support development of guidelines for industry, Regulatory Authorities and HTA bodies on how and when to include patient perspectives on benefits and risks of medicinal products. " 


Click here to read more.





Donate/Fundraise for Cure DM CIC

Raising Awareness / Provide Support / Fund Research


Cure DM CIC is a Community Interest Company where ALL PROFITS are used to provide family help and support to those living with the condition NOW. We arrange get togethers and enable families to connect, as well as funding research both direct and via MDUK for The Fight Fund.

We would love your support in any way at all, please contact us to find out how we can help you, to help us, to help others!

email: emma@cmmd.uk or kathy@cmmd.uk

Funding Research

You can support The Congenital Myotonic Dystrophy Fight Fund by visiting the Justgiving page above (click logo) and either making a one off donation, supporting one of our amazing fundraisers, or fundraising yourself for our campaign! All funds sent to this page will be sent to MDUK and used 100% for research solely into CDM.

email: fundraising@cmmd.uk for more info.