We are glad you have found us!

Perhaps you have DM yourself, or are a parent of a child with Congenital Myotonic Dystrophy. You may be a grandparent, a relative or friend. Maybe you are a professional, researching the condition, or perhaps you are still unsure whether you or your child or loved one has Myotonic Dystrophy - whomever you are, we are happy to have you join our family.  

This is a group for YOU - so all your suggestions and comments are welcome!

Please take time to have a good look at our site, and if you have any questions, ideas, information, or just want to say hello - please do feel free to email us!



Congenital and Childhood onset Myotonic Dystrophy in the UK

We are delighted to share with you our 1st research poster, using results from the questionnaire below.

Presented by Dr Nikoletta Nikolenko in March 2021 at the 14th Annual Neuromuscular Translational Research Conference.

CLICK HERE to view the poster!


Miles Cubs!

CLICK HERE to find out how you could have your own cub!

Cure DM are delighted to announce our new campaign.

Miles is our much loved Mascot for our families and children living with DM, and in the past we have sent him to families in need of support or having a celebration. He is getting a bit old now, and wants to have a bit of a rest so will reside in the CURE DM shop.

Also…… it seems he has a litter on the way! 

We will be sending cubs out to the children in our community. This campaign is funded by our amazing supporters, we cannot do this without the ongoing fundraising and support we are receiving.

THANK YOU to everyone who is helping make this possible. 



Please take 2 minutes to complete the following survey, and please share with / complete for every member of your family/community who may be able to help.


The results from this survey will show that we have a large and varied Myotonic Dystrophy community in the UK, and we NEED research and studies.

PLEASE support us in showing that DM Research is an area worthy of support.




Donate/Fundraise for Cure DM

Raising Awareness / Provide Support / Fund Research


Cure DM is a registered charity, where all funds are used to provide family help and support to those living with the condition NOW. We arrange get togethers and enable families to connect, as well as funding/facilitating research. 

We would love your support in any way at all, please contact us to find out how we can help you, to help us, to help others!

email: curedm@outlook.com



AMO Pharma Announces Initiation of Pivotal REACH-CDM Clinical Trial for AMO-02 in Treatment of Congenital Myotonic Dystrophy

Exciting update for the AMO-02 REACH-CDM trial, in a time of uncertainty in the world.

CLICK HERE for more information and the full press release