....from diagnosis to a cure!
We are glad you have found us!
Perhaps you have DM yourself, or are a parent of a child with Congenital Myotonic Dystrophy. You may be a grandparent, a relative or friend. Maybe you are a professional, researching the condition, or perhaps you are still unsure whether you or your child or loved one has Myotonic Dystrophy - everyone is welcome!
Please take time to have a good look at our site, and if you have any questions, ideas, information, or just want to say hello - please do feel free to email us!
Cure DM Presents at the International Myotonic Dystrophy Consortium (IDMC-13)
We are delighted to have presented an updated poster at the IDMC, using results from the ongoing questionnaire here.
Presented by Emma-Jayne Ashley in June 2022
CLICK HERE to see more on the IDMC.
You can also view the presentation in full here
Below you can see the slide-show from the community/charity update presentation. Follow the link above to see the full speech.
Final closing conference for the PREFER Patient study! Click HERE to see our updates and how we can benefit from the new patient preference framework!
Cure DM are delighted to announce our new campaign.
Miles is our much loved Mascot for our families and children living with DM, and in the past we have sent him to families in need of support or having a celebration. He is getting a bit old now, and wants to have a bit of a rest so will reside in the CURE DM shop.
Also…… it seems he has a litter on the way!
We will be sending cubs out to the children in our community. This campaign is funded by our amazing supporters, we cannot do this without the ongoing fundraising and support we are receiving.
THANK YOU to everyone who is helping make this possible.
"This site is owned and operated by Cure DM, which is a registered charity. Nothing contained in this site is or should be considered, or used as a substitute for medical advice, diagnosis or treatment. The site owners and administrators cannot accept any legal or personal liability for the outcomes of actions taken by you in using this information. This site and its information do not constitute the practice of any medical, nursing, registered dietitian or nutritionist, or other professional health care advice, diagnosis or treatment.
All items and articles are written by individual authors. The opinions expressed are entirely the authors' own, except where clearly indicated. We strongly advise you to speak with a medical professional about all aspects of the condition."