UK Myotonic Dystrophy Patient Registry

Thank you to Ben Porter of the UK DM Registry for allowing us to share this excellent information.

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UK Patient Registry

There is lots of information on the page to explain what the registry is, why it is used and how it could benefit the community in future studies and trials. Whilst we know there are many patients int he UK with DM, it is still believed to be a 'rare disease' and very little is known about it. Your help, by registering here, means that you ill be counted, and it can be shown that we have a community of patients within the UK who deserve to be supported.