International DM Family day - 24th July 2021
International Myotonic Dystrophy Awareness day - 15th September
We are delighted to announce that in addition to the family day in July, the 15th September 2021 will see the launch of the International Myotonic Dystrophy Awareness day, with the first ever collaboration of worldwide Myotonic Dystrophy-focused groups.
The day aims to garner the attention of the wider general public, researchers, healthcare professionals, fundraisers and anyone with an interest in changing the future for those with Myotonic Dystrophy.
Visit the International Awareness day page on the MDF Website here, to see how you can get involved!
It was 2016 when we realised there were no awareness days for Myotonic Dystrophy. Well, we couldn't have that - so we started our own celebration day. The 4th Saturday of July became International Myotonic Dystrophy Family day!
This is a day for the community to come together to support eachother, celebrate the 'family' we have found. DM has many challenges, but one thing everyone agrees on is that we ARE a family. UK, USA, Europe, Asia.... wherever we are, we all face similar challenges, and the support our community provides is worth celebrating. Our family day has been described as a day of fun, a day to share stories and experiences within our groups, a day to feel part of something bigger, a day to meet up with others, raise awareness and positivity. This is not a day for fundraising or campaigning - this is a FAMILY day.
Our next family day is on Saturday 24th July 2021, and we would love you to get involved! How will you celebrate the day?
We have organised a fun filled day (weekend or week!) at Butlins Skegness, and would love to see as many families there as possible. You can read more below, or by visiting our dedicated facebook page.
If you are unable to join us in person, but would like to support the day in your own way, please do get in touch - we would love to hear your ideas!
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