We are glad you have found us!
Perhaps you're a parent of a child with Congenital Myotonic Dystrophy, a grandparent, a relative or friend. Maybe you are a professional, researching the condition, or perhaps you are still unsure whether you or your child has Myotonic Dystrophy - whomever you are, we are happy to have you join our family.
This is a group for YOU - so all your suggestions and comments are welcome!
Please take time to have a good look at our site, and if you have any questions, ideas, information, or just want to say hello - please do feel free to email us!
Covid-19 and Myotonic Dystrophy.
We have been contacted by many patients and caregivers concerned about how this new strain of Coronavirus may affect them. Please follow this link for some advice we have gathered.
Please do contact us if you need any support with printed guidelines or alert cards.
Cure DM are delighted to announce our new campaign.
Miles is our much loved Mascot for our families and children living with DM, and in the past we have sent him to families in need of support or having a celebration. He is getting a bit old now, and wants to have a bit of a rest so will reside in the CURE DM shop.
Also…… it seems he has a litter on the way!
We will be sending cubs out to the children in our community. This campaign is funded by our amazing supporters, we cannot do this without the ongoing fundraising and support we are receiving.
THANK YOU to everyone who is helping make this possible.
"This site is owned and operated by Cure DM CIC, which is a nonprofit organization. Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment. The site owners and administrators cannot accept any legal or personal liability for the outcomes of actions taken by you in using this information. This site and its information do not constitute the practice of any medical, nursing, registered dietitian or nutritionist, or other professional health care advice, diagnosis or treatment.
All items and articles are written by individual authors. The opinions expressed are entirely the authors' own, except where clearly indicated. We strongly advise you to speak with a medical professional about all aspects of the condition."