We are glad you have found us!

Perhaps you're a parent of a child with Congenital Myotonic Dystrophy, a grandparent, a relative or friend. Maybe you are a professional, researching the condition, or perhaps you are still unsure whether you or your child or loved one has Myotonic Dystrophy - whomever you are, we are happy to have you join our family.  

This is a group for YOU - so all your suggestions and comments are welcome!

Please take time to have a good look at our site, and if you have any questions, ideas, information, or just want to say hello - please do feel free to email us!



Published: Impact of prematurity and the CTG repeat length on outcomes in congenital myotonic dystrophy

Click here to read more and see the full paper.



Miles Cubs!

CLICK HERE to find out how you could have your own cub!

Cure DM are delighted to announce our new campaign.

Miles is our much loved Mascot for our families and children living with DM, and in the past we have sent him to families in need of support or having a celebration. He is getting a bit old now, and wants to have a bit of a rest so will reside in the CURE DM shop.

Also…… it seems he has a litter on the way! 

We will be sending cubs out to the children in our community. This campaign is funded by our amazing supporters, we cannot do this without the ongoing fundraising and support we are receiving.

THANK YOU to everyone who is helping make this possible. 



We are delighted to share two current studies, please follow the links below to find out about these important surveys. Click the headings.


Patient Preferences for both patients AND Caregivers.

An important opportunity to give patients and caregivers a voice.  


UCLH Swallowing Study

  The research is led by a specialist team based at The National Hospital for Neurology and Neurosurgery and University College London.  

For both caregivers and patients, living with a neuromuscular condition which affects their swallowing.


Please take 2 minutes to complete the following survey, and please share with every member of your family/community who may be able to help.


The results from this survey will show that we have a large and varied Myotonic Dystrophy community in the UK, and we NEED research and studies.

PLEASE support us in showing that DM Research is an area worthy of support.




Donate/Fundraise for Cure DM CIC

Raising Awareness / Provide Support / Fund Research


Cure DM CIC is a Community Interest Company where ALL PROFITS are used to provide family help and support to those living with the condition NOW. We arrange get togethers and enable families to connect, as well as funding research both direct and via MDUK for Myotonic Dystrophy research. 

We would love your support in any way at all, please contact us to find out how we can help you, to help us, to help others!

email: emma@cmmd.uk