Welcome!

We are glad you have found us!

Perhaps you have DM yourself, or are a parent of a child with Congenital Myotonic Dystrophy. You may be a grandparent, a relative or friend. Maybe you are a professional, researching the condition, or perhaps you are still unsure whether you or your child or loved one has Myotonic Dystrophy - whomever you are, we are happy to have you join our family.  

This is a group for YOU - so all your suggestions and comments are welcome!

Please take time to have a good look at our site, and if you have any questions, ideas, information, or just want to say hello - please do feel free to email us!

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International Myotonic Dystrophy Awareness Day Declared for September 15, 2021

 In honour of Rare Disease Day 2021, a global alliance of myotonic dystrophy-focused organisations have, for the first time, united to announce the declaration of International Myotonic Dystrophy Awareness Day -  to be observed each September 15th.

See the full joint press release HERE

  CLICK HERE to be taken to the dedicated landing page for International DM Awareness day, kindly hosted by Myotonic Dystrophy Foundation.

 

 

Miles Cubs!

CLICK HERE to find out how you could have your own cub!

Cure DM are delighted to announce our new campaign.

Miles is our much loved Mascot for our families and children living with DM, and in the past we have sent him to families in need of support or having a celebration. He is getting a bit old now, and wants to have a bit of a rest so will reside in the CURE DM shop.

Also…… it seems he has a litter on the way! 

We will be sending cubs out to the children in our community. This campaign is funded by our amazing supporters, we cannot do this without the ongoing fundraising and support we are receiving.

THANK YOU to everyone who is helping make this possible. 

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CURE DM - MYOTONIC DYSTROPHY COMMUNITY SURVEY

Please take 2 minutes to complete the following survey, and please share with / complete for every member of your family/community who may be able to help.

CLICK HERE FOR SURVEY!

The results from this survey will show that we have a large and varied Myotonic Dystrophy community in the UK, and we NEED research and studies.

PLEASE support us in showing that DM Research is an area worthy of support.

 

 

 

Donate/Fundraise for Cure DM

Raising Awareness / Provide Support / Fund Research

 

Cure DM is a registered charity, where all funds are used to provide family help and support to those living with the condition NOW. We arrange get togethers and enable families to connect, as well as funding/facilitating research. 

We would love your support in any way at all, please contact us to find out how we can help you, to help us, to help others!

email: curedm@outlook.com

 

RESEARCH UPDATES

AMO Pharma Announces Initiation of Pivotal REACH-CDM Clinical Trial for AMO-02 in Treatment of Congenital Myotonic Dystrophy

Exciting update for the AMO-02 REACH-CDM trial, in a time of uncertainty in the world.

CLICK HERE for more information and the full press release