!
The most important thing we can do is raise awareness of the condition. We are currently working with an impressive team of UK clinicians and researchers to produce a UK Clinical guideline. This is important, because being given a diagnosis and being told to 'google it' is not the best way for anyone to come to terms with this life changing event - and for many of us, it is a life changer - a bolt out of the blue.
We are working to produce a UK booklet for those living with DM, including the families and carers, to help them through what is often a very uncertain time.
Your input would be very helpful here, if you have any comments on what did or didn't help you upon diagnosis, we would love to hear your experiences. This would be a great help in spreading awareness to the Medical professionals involved, who might not be aware what we need to help us at this time. You can send any comments to: curedm@outlook.com
Professor David Brooks, Imperial College London, and Dr Chris Turner, University College London Hospitals.
Muscular Dystrophy UK Conference.
Disclaimer:
"This site is owned and operated by CureDM, which is a registered charity. Nothing contained in this site is or should be considered, or used as a substitute for medical advice, diagnosis or treatment. The site owners and administrators cannot accept any legal or personal liability for the outcomes of actions taken by you in using this information. This site and its information do not constitute the practice of any medical, nursing, registered dietitian or nutritionist, or other professional health care advice, diagnosis or treatment.
All items and articles are written by individual authors. The opinions expressed are entirely the authors' own, except where clearly indicated. We strongly advise you to speak with a medical professional about all aspects of the condition."
