Well, the last one is an easy answer - we want a cure - if we could click our fingers and remove this gene expansion from our loved ones, of course we would.
Unfortunately its not that simple, so, the next best thing... we want to raise money to help the Scientists and Doctors find a cure. Find ways to help and support each other, and give our children the opportunity meet others with CMMD, and make life a little bit easier for everyone.
We want to drive forward with research, whilst helping families deal with this life-changing condition.
Congenital Myotonic Dystrophy is a rare condition, with families often having no knowledge of the genetic disorder until a child is born with CDM. Therefore it is essential we do all we can to raise awareness of the condition, and our group.
You can learn more about who we are, and why we started this group here - Meet the Team!