If you have found our site, it is likely you have been affected by CDM, either through a family member or loved one. We want to reach out to you so that you do not feel alone. If desired, we can also put you in contact with another family in your area.
However, we understand that some people do not want to have contact with other families. You are no way obliged to be part of this.
If you would like to have contact with others for 'peer support', there is a dedicated Facebook page where we have regular chats, discuss everything you could imagine, and its a great place to 'sound off' or get support if you need. Also, to meet others in similar situations, with family meet ups around the country.
You can join the group - CMD FAMILIES IN ACTION by clicking this link or logo. The group is run by Kathy and Emma and they will be happy to add you if you 'click to join'.
It is a closed group, so cannot be accessed unless you are a member, it is a safe and private environment. You can see more on the FIA website here!
Support comes in many ways, and what works for one person may not be to the needs of another. We have tried to put together a few different ways in which to provide (and receive) support. We hope to reach as many families affected by Congenital Myotonic Dystrophy as possible, and if you have any suggestions on the type of help and support would benefit you, please do contact us.