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The International Myotonic Dystrophy Consortium is the worlds largest Myotonic Dystrophy scientific conference, held every 2 years.
The 2021 conference was postponed due to the ongoing COVID Pandemic, but the conference returned with a 'hybrid' set-up in 2022.
Held in Osaka Japan, and on-line, the 2022 IDMC-13 was a great success and Cure DM are delighted to have been involved. We are very much looking forward to the next 2 years, seeing how research progresses, and joining IDMC-14 in the Netherlands.
We were delighted to give a poster presentation on the ongoing CURE DM study - follow the link to see the poster presentation in full.
Congenital and childhood onset Myotonic Dystrophy in the UK.
We were also asked to do a 10 minute organisation presentation, during day 1 of the conference. We represented the UK Myotonic Dystrophy community, gave a charity update on the last 3 years, and a small view into what living with DM is really like.
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